Ashen Kumbar, who is now eleven years old and has suffered from a muscular problem for the rest of her life, is in constant discomfort. This condition caused her neck to remain bent at a 90 degree angle, which results in her head hanging down and desperate need of surgery to save her life, but unfortunately, her family does not have the financial means to pay for it. It was speculated that Op Sheen suffered a muscle condition that leads to a twisted neck.
A young girl from Pakistan, only 13 years old, decided to undergo potentially life altering surgery in order to get her neck straightened. She suffered from an extremely rare ailment that caused her neck to bow at an angle of 90 degrees. The adolescent had trouble eating, walking and using the restroom and was unable to attend school because of her condition.
A little girl, aged 13 who suffered from an unexplained muscular issue that caused her head to be cocked to the side at an angle of 90 degrees, has recently undergone life changing surgery to have her neck straightened out atlanto axial. Rotatory dislocation is the medical term for the severely twisted neck of Afghan ghoul. And said to have developed as a.
Result of a condition called atlanteaxial rotatory dislocation. After injuring her neck while playing outside when she was just eight months old, Ghoul, who has cerebral palsy, began exhibiting symptoms of the condition for the first time. Epstein is unable to hold her head.
Up, which causes her to live in continual discomfort. As a result of this, she has difficulty eating, using the restroom and even walking. Epstein is unable to attend school because of her condition. Therefore, she stays at home in Myths and Pakistan with her mother, Jamilne, 52, and her elder brother, Mohammed Yakub Kumbar, 27. Mohammed Yakum Kubar is Ashin’s older brother.
The $34,000 that was contributed for aphid’s operation through a GoFundMe page allowed her to have a life changing procedure performed at Apollo Hospital in New Delhi, India the week before. Last I’ve seen is currently making a full recovery after what appears to have been a fruitful procedure. I’ve seen, who is the youngest of six children, was healthy when she was born.
Nevertheless, her life took a dramatic change. When she was just eight months old. And fell while playing outside. The bending in opposition’s neck initially didn’t. Raise any red flags for her parents, but with time it became increasingly concerning. They eventually took her to a local faith healer due to the few cash they had, but it did not alleviate her condition in any way.
In 2016, her tale was brought to the attention of people all over the world after an article posted on a news website garnered well wishes and a Go Fund me campaign was established to assist her family in affording surgery. The girl was transferred to the Aga Khan University Hospital in Karachi, Pakistan in February 2018, where doctors confirmed that they would operate on her, but only offered her a 50% chance of survival.
They told us there is a 50% chance for the successful surgery and urged us to go home and ponder over it, Mohammed Jacob, Ashen’s eldest brother, said. They told us there’s a 50% possibility for the successful surgery and urged us to go home and ponder over it, Mohammed Yakubshin’s eldest brother said. They told us there’s a chance for the successful surgery, but nothing of the sort ever took place. However, Dr. Raja Gappalan Krishnan, who worked for the NHS for 15 years before returning to India to focus on extreme medical cases, has successfully dealt with a large number of challenging spine surgeries throughout.
His career and he was prepared to. Assist Ashim according to what he shared. Her brother Yakub got in touch with me after watching a documentary I had done where I had successfully operated on a youngster with a condition that was similar to hers. I was confident that I could enhance the overall quality of her life, but first I needed to see her in person. If we waited much longer, her chances of making a full recovery from any operation would be quite low.
In 2016, for the purpose of the. Documentary, The Boy Who Sees Upside Down on Channel Five, Dr Krishnan performed surgery on Mahendra Ahwar, then twelve years old. Since Mahindra was a young boy, his neck had been twisted to the point where it hung at an angle of 180 degrees. Apache’s treatment with Dr Krishnan was halted as the COVID-19 pandemic spread over the world.
Yakub and Dr Krishnan kept in contact with each other, but the dates for any travels to India or surgeries were uncertain. The following year, on November 16, Yakuba accompanied his sister on a flight to Delhi, where their mother remained at home. According to the rules of their visa, only one adult was permitted to act as a chaperone. Two days later, Dr Christian had the pleasure of first making contact with a doctor. Christian, who had donated his services to Avashin’s operation at no cost whatsoever, stated.
I had spoken to the family for. Such a long time, but I had not seen a Sheen. After seeing her, it was evident that it was likely she would have died. In the near or medium term if she hadn’t been treated, and it was clear that she would have died if she hadn’t been treated. The results of the test indicated that. It was one of the most difficult. Cases I’d ever encountered in my career and it was most likely the first example of its kind anywhere in the world.
It was imperative that I make an. Effort to assist her because she’d been neglected for far too long. I’ve seen only learned to walk when. She was six years old and to speak when she was eight years old because she had cerebral palsy. However, when her neck began to flex. The family always assumed it was because.
Of an injury she had when she was a baby. According to Jakub, Ashin has never been able to go to school or play with her friends. Instead, she spends her time at home with Jacob and their mother. In the year 2020, her father passed away from cancer, but despite the fact that she has to deal with ongoing suffering, she has managed to keep her cheerful demeanor throughout her life and is the source of much joy for her family because of Ivchen’s medical condition.
Yakub and Hafshin have been in Delhi. India for about four months now. In the Beginning back in the beginning. Of December, she had to have a Halo gravity traction put in place so. She could train her neck to be. Upright for some time. She needed to go in for checkups on a weekly basis to watch any sign of improvement, and happily, her neck. Started to straighten out ever so slightly.
Which made surgery viable. During her surgery on February 28, Dr. Christian and his team fused her skull to her spine. The procedure took 6 hours. Dr. Christian stated that his first objective. Was to reduce the amount of pressure. Placed on the spinal cord. After removing some discs from the neck, he used a Rod and some screws to secure the skull to the cervical spine in order to retain the neck in its natural position. Dr. Christian stated that fusion was necessary for a Sheen to achieve success in the long run, even though the Rod and screws are currently supporting her head.
If the bone fusion procedure is not. Performed, the screws will eventually fall out.
Because they’re only serving as a temporary scaffolding. All in all, we couldn’t be happier. Because of the severe compression that had. Been placed on the spinal cord. It was absolutely essential that we protected while doing surgery. When she was able to walk a. Few steps three days after surgery, we. Felt a tremendous amount of relief.
Unbelievably, the straightening of her neck has resulted in an increase in the volume of her voice. Dr. Christian continued by saying, her family just questioned me recently if she will be entirely normal now and because of her mild form of cerebral palsy, I. Was required to explain that the function.
Of her limbs would not recover because of the injury to her brain. However, her head is held correctly and she’s able to look at the world in the correct orientation rather than an inverted her coordination will also improve after her brain adjusts to the altered location of her head in relation to the center of her body.
As Sheen will be released from the. Hospital sometime during this month and she will ultimately travel back to Pakistan, she is needed to keep wearing the neck brace, and Dr. Christian plans to do weekly video chat to check in on her and assess her development. She will not have to go back.
To Delhi anytime soon as long as there are no issues, so keep your fingers crossed. Atlanteau axial rotational Dislocation what does that term mean? According to the Journal Alzheimer, atlanteaxial rotational supplication is one of the most common causes of Torticolis in children. This condition can be brought on by. A variety of factors including trauma of.
Variable entity and upper respiratory infection, head and neck injuries, inflammatory arthritis and other conditions. Because the rotational displacement stays within the vast typical ranges of the child’s cervical mobility, the term rotational subfluxation has been called into question by a variety of experts.
As a result, this clinical entity has been referred to by a number of various names including Rotary dislocation, rotating deformity, rotational displacement, and spontaneous hyperemic dislocation. The patient displays Torticolis with the head tilted laterally and with the contralateral rotation. In addition, there is spasm.